Missed Diagnoses Myalgic Encephalomyelitis Chronic Fatigue Syndrome Second Edition Byron Hyde Md 9780557325177 Books
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A few notes on this New revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook "Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with Cfs as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything. The original concepts of searching for occult disease are relevant to patients today with Cfs, Me and other fatiguing illnesses. Furthermore, because you do not find pathology does not mean there is none."- Byron Hyde
Missed Diagnoses Myalgic Encephalomyelitis Chronic Fatigue Syndrome Second Edition Byron Hyde Md 9780557325177 Books
If you have undiagnosed chronic pain and/or fatigue, you must read this book. You will then understand why the medical system is not doing a very good job of dealing with your illness. The book also provides many clues about what might be wrong. The discouraging thing is that without more doctors and researchers dedicated to this sort of diagnosis, it's very difficult for people to gain access to somebody who can help them. Individuals can try to figure it out themselves and pay privately for extra tests, but it is extensive systematic investigation by a medical expert that is necessary and appropriate. It would save our society money in the long run to invest in this type of research and diagnosis, but nobody is taking the responsibility to improve the situation. If one doctor (the author) can diagnosis 70% of the mystery cases that come to him, just think how much could be done if more doctors had the training and experience and could take the time to actually find the CAUSES of pain and fatigue.Product details
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Tags : Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition [Byron Hyde Md] on Amazon.com. *FREE* shipping on qualifying offers. A few notes on this New revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook: Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue,Byron Hyde Md,Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition,lulu.com,055732517X,Popular Science,Science General,Science: general issues
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Missed Diagnoses Myalgic Encephalomyelitis Chronic Fatigue Syndrome Second Edition Byron Hyde Md 9780557325177 Books Reviews
People ill with M.E., and others misdiagnosed with C.F.S., face discrimination of the worse kind from most of the medical community... being regularly stereotyped through ignorance. Dr. Hyde's book clearly differentiates the disease Myalgic Encephalomyletis, between the syndrome called Chronic Fatigue. Reading it will help eliminate any confusion between the two.
Jodi Bassett's, Hummingbird Foundation Site for ME, contains the following quote from Dr. Hyde.
"Do not for one minute believe that CFS is simply another name for Myalgic Encephalomyelitis. It is not. The CDC 1988 definition of CFS describes a non-existing chimera based upon inexperienced individuals who lack any historical knowledge of this disease process. The CDC definition is not a disease process. It is (a) a partial mix of infectious mononucleosis /glandular fever, (b) a mix of some of the least important aspects of M.E. and (c) what amounts to a possibly unintended psychiatric slant to an epidemic and endemic disease process of major importance. Any disease process that has major criteria, of excluding all other disease processes, is simply not a disease at all; it doesn't exist. The CFS definitions were written in such a manner that CFS becomes like a desert mirage The closer you approach, the faster it disappears and the more problematic it becomes (2006, [Online])."
I bought this book for my general practitioner and will be buying more in the future for the specialists I see.
This is an excellent educational book for physicians and those wanting to view M.E., vs C.F.S., from a clinical standpoint.
For practical and helpful advice for day to day living with M.E., I highly recommend Jodi Bassett's book, "Caring for the M.E. Patient"
Caring For The M.E. Patient
This book is essential reading for doctors and patients alike, and those interested in M.E. as well as those interested in 'CFS' or that have been misdiagnosed as 'CFS.'
(As this book explains, there is no such distinct disease as 'CFS' - and every diagnosis of 'CFS' is a MISdiagnosis. This book also explains that M.E. is not a similar disease to 'CFS' nor a mere 'fatiguing disorder.')
The Nightingale Definition of Myalgic Encephalomyelitis paper in particular cannot be recommended highly enough.
Finally this is a modern and TESTABLE definition of Myalgic Encephalomyelitis, created by the world's leading and most experienced M.E. expert, Dr Byron Hyde. This is NOT a redefinition of CFS but is instead a pure M.E. definition.
It draws on the long history of M.E., collates the evidence from each of the world's leading M.E. experts (past and present) and combines this with details of the most modern medical tests. This definition also rightly gives no importance at all to the bogus notion of mere `fatigue' having any importance in the diagnosis/definition - unlike each of the `CFS' definitions, including unfortunately the Canadian `ME/CFS' definition which just mixes in a few M.E. facts with what is still primarily a `CFS' redefinition.
Dr Hyde explains that
"I believe it essential to define clearly Myalgic Encephalomyelitis, returning the definition to its clinical and historic roots and complementing this information with the certitude of modern scientific testing. That is what the Nightingale definition of M.E. sets out to do. But let me first ask you a very important question.
What is the purpose of any medical definition? What is the purpose of any disease definition if it is not to allow the physician to rapidly and accurately diagnose a specific illness in order to attempt to effectively treat the patient before the illness becomes chronic or to call in the appropriate specialists? Our definition solves this problem."
"There is a third purpose for any disease definition. That is to clearly define the disease so that various physicians and researchers can clearly understand that they are talking about the same illness spectrum and so launch research into what will become an effective treatment. Our definition gives a clear baseline for investigation.
The Nightingale definition is based upon the following two criteria (a) The excellent scientific and clinical work of respected physicians and scientists who investigated the various M.E. epidemics. (b) The results of modern scientific testing techniques and the knowledge accruing from examining thousands of M.E. patients using these and more historical techniques. The proposed M.E. definition is designed to improve early diagnosis and treatment for the tens of thousands of patients stricken with M.E. It is not a new definition of CFS nor should it be conceived as a rewording of any previous CFS definition.
The definition is set out in such a fashion as to enable the physician to make a bedside or office clinical diagnosis and then to scientifically test the hypothesis. This will allow the physician an early diagnostic understanding of this complex illness and a scientific and technological method to investigate and confirm the diagnosis. It is well known by all serious physicians that in order to assist any patient in a partial or full recovery the illness must be (a) prevented from occurring by either immunization or understanding and avoiding the causes, (b) or diagnosed and treated immediately following onset. The Nightingale Definition assists the physician both in diagnosis and early treatment.
What follows is the primary M.E. definition for adults. I believe it essential to define clearly Myalgic Encephalomyelitis. That is what the Nightingale definition of M.E. sets out to do........
To various degrees many if not all of the above historic findings have been observed and discussed by Doctors Alexander Gilliam, Bjorn Sigurdsson, Alberto Marinacci, Andrew Lachlan Wallis, A Melvin Ramsay (Elizabeth Dowsett), John Richardson, Elizabeth Bell, Alexis Shelokov, David C Poskanzer, W.H. Lyle, Sir E. Donald Acheson, Louis Leon-Sotomayor, J. Gordon Parish and many others."
'The Complexities of Diagnosis' is also very, very good overall and is also recommended. (This piece does unfortunately use the misleading and confusing term 'ME/CFS' throughout, but the content of the paper makes it crystal clear that M.E. and 'CFS' are not at all the same.)
Buy this book, and an extra copy for your doctor.
We need a hundred Dr Hyde's! Things are getting worse and worse for M.E. patients worldwide, sadly.
Jodi Bassett, The Hummingbirds' Foundation for M.E.
It doesn't refer to much treatment...
This book should be read by anyone who wishes to understand Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. And it needs to be read with an open mind. Dr. Hyde knows the subject well!
If you have Chronic Fatigue Syndrome (CFS) or Myaligic Encephalomyelitis (M.E.)then this is the book to read this year. Dr. Byon Hyde has been following M.E. epidemics for decades now and has also been following CFS. After seeing 2000+ CFS patients and discovering that they had other, major, missed diagnosed illnesses, he wrote this book.
His is not a popular stand, but then, the truth hardly every is.
Easy to read and very enlightening. Also, helps the Nightingale Research Foundation which helps those with ME or CFS.
Excellent book. Learned what I needed to know. Easy to understand
Very informative book on ME. Gets a bit technical in places, but a good book to share with your health care provider.
If you have undiagnosed chronic pain and/or fatigue, you must read this book. You will then understand why the medical system is not doing a very good job of dealing with your illness. The book also provides many clues about what might be wrong. The discouraging thing is that without more doctors and researchers dedicated to this sort of diagnosis, it's very difficult for people to gain access to somebody who can help them. Individuals can try to figure it out themselves and pay privately for extra tests, but it is extensive systematic investigation by a medical expert that is necessary and appropriate. It would save our society money in the long run to invest in this type of research and diagnosis, but nobody is taking the responsibility to improve the situation. If one doctor (the author) can diagnosis 70% of the mystery cases that come to him, just think how much could be done if more doctors had the training and experience and could take the time to actually find the CAUSES of pain and fatigue.
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